ADVOCATE FOR RARE CANCER RESEARCH
Join the Movement to Protect and Advance Rare Cancer Research
Rare cancers like myoepithelial carcinoma (MEC) already face major gaps in research, treatment, and awareness. Now, federal funding cuts threaten to widen those gaps, putting lives at risk and halting critical progress.
We can’t afford to stay silent.
This page highlights advocacy actions you can take right now to support rare cancer patients and protect critical research funding. We’ll continue adding opportunities from trusted partners across the rare cancer space.
Why Advocacy Matters
This is about more than research. It’s about survival. It’s about justice. It’s about every person still waiting for answers.
Current Advocacy Actions
TargetCancer Foundation: Paying With Our Lives
This powerful campaign calls on Congress to reverse devastating cuts to rare cancer research funding. Without urgent action, the future of promising studies — and the patients counting on them — hangs in the balance.
Take action: Explore the campaign, get the facts, and find out how you can take action right now.
TargetCancer Foundation: 50 Stories from 50 States
Share or Read Stories →
Part of the “Paying With Our Lives” campaign, this project is collecting 50 stories from all 50 states to highlight the human impact of the federal budget cuts on rare cancers like MEC.
Take action: Share your own experience using the link above, or amplify the voices of others by posting on social media with #SaveRareCancerResearch.
Take Action. Find Hope. Drive Change.
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Patients & Families
Recently diagnosed with MEC?
Explore resources to understand your diagnosis, join the MEC Registry, learn about tissue donation and clinical trials, and connect through warrior stories.
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Advancing Research
We partner with scientists, clinicians, and collaborators to accelerate discoveries in MEC.
Access research publications, connect with peers, and contribute to the growing body of knowledge.
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Get Involved
Every voice and every dollar makes a difference.
Join the community, fundraise, donate, and advocate for ultra-rare cancer research—together, we can expand the mission.