Sebas and Daddy leaving the hospital after another blood transfusion. 2/04/2021
Patient Registry
A Patient Registry is a critical component of finding a cure for MEC and other rare cancers. In essence, a Patient Registry is a real-time Wikipedia of data related to MEC, so researchers can begin to understand how MEC affects different populations.
We are in the process of establishing a Patient Registry for MEC, which, in and of itself, is a groundbreaking endeavor since such little research exists on MEC. Our Patient Registry will guide our research team toward more effective treatment options.
What is a Patient Registry?
A Patient Registry is a critical component of finding a cure for MEC and other rare cancers. In essence, a Patient Registry is a real-time Wikipedia of data related to MEC, so researchers can begin to understand how MEC affects different populations.
We are in the process of establishing a Patient Registry for MEC, which, in and of itself, is a groundbreaking endeavor since such little research exists on MEC. Our Patient Registry will guide our research team toward more effective treatment options.
What is a Patient Registry?
A Patient Registry is a critical component of finding a cure for MEC and other rare cancers. In essence, a Patient Registry is a real-time Wikipedia of data related to MEC, so researchers can begin to understand how MEC affects different populations.
We are in the process of establishing a Patient Registry for MEC, which, in and of itself, is a groundbreaking endeavor since such little research exists on MEC. Our Patient Registry will guide our research team toward more effective treatment options.