Natural History Study of Rare Solid Tumors

Researchers at the U.S. National Cancer Institute (NCI) are currently enrolling MEC patients in the Natural History Study of Rare Solid Tumors. Clinical and biological information collected by the study, including tumor tissue samples, will provide a better understanding of MEC, and how we can more effectively treat this disease.

Natural history studies compile information from a large number of patients to better understand the “history” of a disease over a long period of time. This study will provide us with comprehensive detailed information about MEC.

To participate and contribute to this team effort as a patient or family member, please contact NCICCRRareTumorClinic@mail.nih.gov.